Friday, July 17, 2009

Bloodwork? Yet?

I hate even posting this now, because I know it will all change by the day's end. But I'll just post again! LOL

I got a call back from our transplant nurse here about the bloodwork. She was shocked that happened to us, and suggested we grab the blood viles and bring them into the office. I suggested them possible getting as much of the bloodwork drawn as possible while she is under anesthesia on Monday. She thought that sounded good so was going to work on getting them the orders.

The crappy thing from yesterday, our insurance is starting to do what insurance companies do best. They are questioning the need for the testing she's having done this coming week. Granted, this is all standard for pre-transplant evaluation. BUT we all know a bunch of office admins and their black and white guidebooks of acceptable testing for specific diagnoses know better and a kidney ultrasound, chest X-ray and MRI are not necessary for receiving something as minor as a heart transplant. (read in- sarcasm). Their problem right now is that her diagnosis does not qualify these tests, and because she is not already on the transplant list they cannot consider this transplant testing. But, um, DUH. She cannot get on the list WITHOUT the testing. I think they just feel they need to TRY denying tests just to say they tried.

So I spoke with the nurse for a while regarding it all. We decided to work on it immediately, calling the insurance company, the transplant case manager we have with the insurance company, and even HER supervisor. Time consuming, but necessary. Hopefully I know before we walk into the building Monday if the MRI will be performed Monday or not now.

* * * * * * * * * * * * * * * * * * * *

We are bracing for another ridiculous weekend. 116 or something, I don't remember. Over 110 it looses importance of the number. A small part of me truly wishes we 'had' to be closer to Loma Linda right now for the sheer fact that we could enjoy doing things instead of hiding out in our house and air conditioning! Hahahaha

PJ is giving me a run for my money. My insomnia is terrible, which is leading to my extreme lack of energy during the day. I was up until 130a last night and still not tired but forced myself to lay down. I probably fell asleep around 2a, and sure enough PJ starts screaming at 230a. I have no clue what his sudden hatred is for his bed. He hates going down to bed, and wakes multiple times crying. And I did the WRONG thing last night, again, and brought him to my bed. I am wondering if some of it has to do with the fact that he sleeps in so late, so today I got him up at 9a. Maybe that'll help? I really don't think he is ready for a big boy bed, but it might be worth a try. Maybe?

We have my neices baby shower tomorrow, which I am super excited about. Considering we might be gone right about the time the baby is born, or soon after, I am excited to be here for as much as possible. I didn't really prove that last night though, as I missed my Godsons graduation from 'summer camp pee wee'. With the events of the past 2 days and dealing with this ridiculous bloodwork and insurance issue, I let myself forget about it. And someone, please scold me for not utilizing the calendar on my BlackBerry. I need to be better about that. So, add me to the list for the worst aunt/godmother/sister-in-law in history.

That's us in a nutshell this morning. I have a TON more things to catch up on today. Not having my car Tuesday really threw my week off!

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