Monday, June 20, 2011

Another wonderful day

Another ECHO today showed more progress! Every millimeter smaller, every droplet less of leakage and every number change is welcomed by us!

They have stopped Gabriellas IV epinephrine and her r-ATG treatments are complete. Today they stopped her IV Lidocaine, magnesium and sodium fluids... And we are hoping she reacts well! The next step is to stop her IV Milrinone.... But that will come in it's own time. Her r-ATG did it's job, depleting her t-cells, and it was successful in stopping her rejection.

So we have gone our first round of rejection, and it was a severe one! We are ever faithful that this will not happen again, but we will not take for granted the healthy times we have and will always be on guard now that we know she is the kind of kid to quietly fall into full blown rejection.

If we can get her levels right of immunosuppressants, get her magnesium and sodium levels back up to where they should be and continue to see progress, we can get out of here! Last night was night eleven here, which could have been miserable in the old unit but is luxurious and tolerable here at the new tower of the hospital!

Thank you all for prayers up to now, and we ask that you do not stop! We believe in complete healing and restoration, and all God wants is for us to simply ask. Prayers to Him are precious not just for him but also us. God is always near, always listening, and does not need fancy words... Just loving meaningful conversation. How lucky are we to serve such an amazing god....

7 comments:

2ndheartmom said...

So, so, so relieved to hear about the improvements! I hope they continue and will continue to think positive and pray for improvements!

Summer said...

Continuing to pray for beautiful G!!! Love the words in your post about prayer!!!

Hugs,
Mason's Mommy

Kaidence's Mommy said...

Yeah! We LOVE good echo's. So glad that things are turning the corner. Hoping that all goes well as she decreases her meds. Kaidence is still on a magnesium tablet a day but that is the only extra med that she is still on from the rejection. Interesting that this was her first rejection and so bad. This was K's first and hers also came on like this and she was 3 years post tx. I am such a believer in prayers. Sometimes they are answered how we would like and other times not....but they are all answered. Hang in there and take care.

George Schroeder said...

Great news, again. Still praying here, so thankful for God's wonderful answer.

Kristine said...

Glad to hear it's tolerable, although I of course wish you were out of there. And so glad to hear she's doing better.

Megan@SortaCrunchy said...

Such WONDERFUL news! I wish I could reach through the screen and give you all a giant HUG right now. Continuing to pray. Y'all are always close to my heart and my thoughts.

Love you! XOXOXOXO

Miss Amy said...

I have been thinking about you all since I last saw you for Gabriella's last speech session of the year. I pulled out the card you gave me and came to your blog. I am sorry for the bad news you received this summer, but I am also glad to read that things are starting to get a little bit better, and very hopeful and praying that things continue to get better. I will be keeping you all in my prayers and thoughts. I sure miss my Fridays with you guys. Give Gabriella a HUGE hug for me:) PJ too:)

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