Friday, June 24, 2011

HOME!

I'll quickly get to and past the hard part, because harping on my disappointment is not worth it. Long story short, we were moved from cardiac at 1am to the general peds floor. Thankfully it was a private room, but nonetheless it is more of a holding cell for kids like Gabriella. They needed the bed on cardiac, and I cannot blame the nurses, doctors, or any of our medical team. I'm disappointed in the hospital for opening a brand new, state of the art hospital set to cater to all the kids in the southwest at a level of excellence and they still have yet to open a cardiac step down for our kids who need more than general peds.

Anyways....

My lack of sleep last night over my aggrivation built confidence to tell the docs on the unit I wanted out today. She isn't on any advanced monitoring and only here to take meds orally & have blood drawn. Luckily my amazing transplant team agreed and is sending us home on home health and a PICC line. A nurse will come and draw levels daily so we can intricately adjust her med levels. We got her 12 outpatient meds delivered and sorted, my advanced schedule of 7 med times through the day and supplies to get us by at home. One last dressing change and we are waiting for transport to take us out!!!

We will proceed with caution for a while. Since she has a PICC line, just finished an aggressive immunity treatment over the last 2 weeks and her levels are lower than desired of immunosuppressant, we will be semi-hermit for a while. Well worth the trade off to be home and in our element.

I couldn't be more blessed to be sitting here watching her do so well again. Makes these last 15 days away from home, away from PJ & Paul and sleeping on a recliner with infrequent showers SO worth it. I'm so honored to have a fighter on my hands. I need to remember this when she is strong willed about other things... I'd rather have her stubborn than one who gives up!!!

11 comments:

Andrea Gunnell said...

I'm so happy to hear you are home!

The Thorne Family said...

So glad you are home. I love the last line of your latest blog. You've got to love strong willed kids. Prayers & hugs.

Jill Thorne

cici said...

Wonderful news. Home is the safest place to hide from germs, she will be much happier too!
She will remain in my daily Prayers.

2ndheartmom said...

Yeah!!! So glad you are getting to go home and that Gabriella is doing well again. I hope they get everything figured out quickly so you don't have to be homebodies for too long. Although, this time of year in AZ, being a homebody probably isn't all that bad...too hot outside! I've been thinking about you guys a lot and am so happy to see you going home!

Corey~living and loving said...

so very glad you are home. still praying.

Grace said...

She is such a miracle!! Thank God that you are in the comfort of your own home.

George Schroeder said...

Great news. Thanking God with you guys, and we'll keep praying!

Ashleigh said...

So glad you guys are home

Kaidence's Mommy said...

So happy that you are home! Makes me laugh about her strong will. Kaidence is the same way and both Mike and I say that we had better teach her right or she will be a big handful when she gets older. These kiddos are determined and I wouldn't want it any other way (ask me in a few years though;))

Summer said...

Yeah! This is fantastic news :) Praying for a smooth continued recovery!

Mason's Mommy

Krista Phillips said...

Yeah for home!!!!!!! Yuck for PICC line and blood draws at home, but you're right... SO worth it! Continuing to pray for continued healing!!!!!

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