Wednesday, August 17, 2011

ZERO

Another amazing ZERO rejection biopsy! Looks like Gabriella bounced back with ferocity this time! Her pressures were back to normal and labs in picture perfect range. I will get further details tomorrow at clinic, but there isn't much that could squash our joy!!

(I apologize for not posting sooner. I did an email update but it never posted and got lost in cyberspace!)

Thursday, August 11, 2011

Do not worry...

I love how one of my favorite sections of the bible was todays devotional.... enjoy!

"Therefore I tell you, do not worry about your life, what you will eat or drink; or about your body, what you will wear. Is not life more than food, and the body more than clothes? Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? Can any one of you by worrying add a single hour to your life?"

And why do you worry about clothes? See how the flowers of the field grow. They do not labor or spin. Yet I tell you that not even Solomon in all his splendor was dressed like one of these. If that is how God clothes the grass of the field, which is here today and tomorrow is thrown into the fire, will he not much more clothe you—you of little faith?

So do not worry, saying, 'What shall we eat?' or 'What shall we drink?' or 'What shall we wear?' For the pagans run after all these things, and your heavenly Father knows that you need them. But seek first his kingdom and his righteousness, and all these things will be given to you as well.

Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own."

http://bible.us/Matt6.25.NIV

Tuesday, August 9, 2011

Bookmarks & RSS readers

I have changed the domain on this blog from the blogspot address to my own domain name.

In order to still receive updates, please point your RSS readers and bookmarks to www.GabriellasHeart.com

Thank you!

Monday, August 8, 2011

Test day.... success.

That was mostly painless. Aside from the general emotional and spiritual struggles I am flooded with when it comes time for Gabriella to have procedures or tests done, today was fairly easy.

We got her checked in, into her room, evaluated, IV started, doctors met and Gabriella rolled into the cath lab in the most timely manner I have ever seen at a hospital!

She opted for the IV over face mask for sedation because she doesn't like the way the mask smells. The nurses were surprised but also impressed she is so knowledgeable and aware of her medical care! She went back crying and anxious, but understanding. It took maybe 90 minutes to complete before the doctor came out and told us that things looked great from what he could see! Those high heart pressures she had in June were back into a picture perfect range and he had no issues with valves while going in for the tissue samples for biopsy. We won't know for a few days what the biopsy results say, but the initial feedback was great!

The best part of the whole process is that they chose to go into her right heart this time, entering through her carotid artery, instead of her femoral in her leg. This meant she didn't have to lay still for 6 hours after the procedure!!!!! I was thankful for this, especially since she had such a miserable time coming out of anesthesia this time. Poor kid was angry, disoriented and frustrated for quite a while!

I couldn't be more at peace on a test day like today. I feel like God has His mighty hands so securely around us all that there is no other feeling to feel than comfort. Even in my nerves, my earthly nerves of a mother concerned for her childs life, I have unwavering faith. Gabriella continues to keep strength when I can honestly say I wouldn't be able to if I were in her shoes. Our marriage took a hit recently but has bounced back with such force that I would say we have never been more in tact and strong. As a family unit, we are moving forward, growing and strengthening.

I feel blessed to be alive.

Sunday, August 7, 2011

Cardiac Cath/Biopsy Tomorrow

I realize how bad I have been in neglecting my blog. Im so sorry about that! Lots of busy days have filled our last few weeks!

Tomorrow morning Gabriella will have her cath/biopsy at Phoenix Childrens. This will be the main indicator regarding her recent rejection as to whether we fully battled it or if she still has some low level of rejection lingering. It also will tell us how her pressures are in her heart. In June during her rejection, her heart pressures were more than double what they should have been. Her function will take a while to get back, if it does, to normal... but its vital to that recovery that her pressures be close to normal!

They will put her under and perform the procedure, then we will spend the whole day laying low as she recovers the procedure and allows the site to clot. Its a long day for her and we will have PJ with us to boot....

I'll post tomorrow how she does and hopefully a big fat ZERO rejection report by Wednesday. :)

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