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Monday, September 28, 2009

Monday midday

I cannot let this day go any further without updating, because I left a lot of people in the dark all day! Paul ran to the RMH to wash off the hospital stink and try to get us into the House on campus of the hospital rather than the one a couple miles away.

Gabriella lost 250cc's of feeds early this morning so they stopped her food for a while. She woke up to doctors and rounds at about 630a, but was not ready for the day yet. Regardless, we had to start.

Being Monday, a lot of things were scheduled and we got rolling quickly. Speech therapy came in to do swallow and food evaluations. She got to eat some applesauce, drink some apple juice and eat a cracker. She didn't do as well with the cracker, because moving it around with her tongue was difficult. The applesauce was perfect consistency for her. The juice went well, and she even drank through a straw, but had a few difficult times swallowing. They are going to do a Barium Swallow test today at 3pm to make sure she is able to swallow in full. I'm hoping we can get this Ng tube out soon and her her on some foods by mouth. I firmly feel that will help strengthen her mouth when she is forced to use it. A great sign was afterwards, she had cracker stuck in her teeth and when I went to brush it out, she opened SUPER wide! It was controlled too, because she did it twice for me. Praise God for little mountains and changes.

We went down right after for a CT scan. The Hematologist just came in to tell me that there was no signs of bleeding at the stroke site and only the slightest of swelling. I asked her the risks of it developing at this point, and she said it normally develops in the first 72 hours, which we are at now! PRAISE God for no additional complications.

When we got back, she was exhausted. She threw up again, and we got her changed and snuggled into bed. Shes been asleep since then, and is recharging her little body. Physical Therapy is coming by at 130p, so with a combination of that and the swallow test, she should be a pretty tired girl this evening.

Please note if you come to visit that the RSV rules are in effect and children under 12 are not allowed, along with anyone with any cooties. If she is sleeping, we do let her rest, but this beautiful hospital has some excellent waiting areas.


Kristen said...

I am so happy to read this update!!! I have been constantly pryaing for her. You are such an awesome mom, and what a wonderful person you are to keep us all updated amongst all of this. Keep your head held high and try to get some rest. I wish I could be there with you to hold your hand and sit with you while your little princess sleeps. <3

Megan@SortaCrunchy said...

WOW! YAY for opening her mouth wide for you! That must have been so encouraging. I am joining you in praying that tube is out soon.

And YAY for great news from the CT scan!

Thanks for keeping us updated, Kristi. I'm praying right now that God will give her the strength to get through the rest of the day's activities.

Anonymous said...

Thanks for keeping us all in the loop of how things are going. I know it must be very HARD for you to find time to do this. I must check this site at least a dozen or more times a day along with my prayers for Gabriella and of course you and your family.

Corey~living and loving said...

Thank you for the update. You are always in my thoughts and prayers.

Anonymous said...

Hang in there Vega family! There isn't a moment that goes by where you are not included in our thoughts/prayers! Stay strong - and if you need anything please don't hesitate to call/text or IM

Anonymous said...

Hi Paul & Family, my thoughts, strenght and prayers go out to your and your family for your sweet Princess Gabriella.
Carolyn =)

Angies Support Team said...

Dear Vega family, I was in a Purity conference all day Saturday. They were talking about Adam and Eve. How God put Adam to sleep and when Adam woke up God had created a whole other person out of one bone from Adam. He has Gabriella and He is not going to let ANYTHING out of His will be done. :] I thought that maybe this might encourage you. :] I know I thought about when I needed it when I heard it. :] Praying! So happy to hear she is doing better! Your Facebook prayer chain has gone up SO much! We are getting the word out as best as we can! :]
In Him
Angie Olivas

Heather said...

Praise Him from whom all blessings flow! It sounds like there are great and positive changes happening. I have five children myself and I cannot fathom what you must be experiencing. In fact, it sucks the very air out of my chest just to imagine it. The courage you have to wake up and breathe every day, to stand and walk, and to be brave enough to share your family struggle with the world is amazing. Stay strong and know that there are a world of mommies praying for you and for Gabriella.

Heather Hilton
Austin, TX

Marcheta said...

Praying for Gabriella and your family.

Tasha said...

It sounds like she is moving along and making small improvements. :) Hooray! We were at PCH today for our barium swallow (okay, so it was Bree's not ours) and I was thinking of you all. Healing vibes and loving thoughts coming your way. :)

P.S. I especially love waiting in the garden/play area outside. It's right outside the NICU. Sometimes a little sun therapy can help to change a mood and pass the time.

The Simmons Family said...

Great news on the CT scan!! I just know that she's going to work hard and recover fully.. I have a great feeling about it!!! We're always praying you ALL. Did you get a room at the RMH on campus?? I sure hope so! Hang in there, it sounds like she's making great progress!!