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Saturday, September 26, 2009

A picture of my sweet girl

I am attempting my first mobile picture upload on this blog. I hope it works. It was a highlight of our day.

Though she is immobile on the right, her left side is also weak and slow, but when she had some strength she showed it. She reached for her Rosetta barbie doll and held her. We pointed at her dress, hair, wings and tights.

We painted her toe nails tonight too, which she enjoyed though she couldn't express it.

She started 5cc every hour of NG tube feedings (nasal tube) and we will slowly increase that. Otherwise, she is sleeping soundly and tonight has been calm.

I want to thank everyone from the bottom of our hearts for the prayers and love. We have had amazing people surround us long distance and up close. We are beyond blessed and she will be given fuel to fight by seeing those that she loves around her.

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