Last night we had our talk with Gabriella, about today being a new day and how it was okay to smile.
Today we woke up. A new day. Gabriella has been amazing today. So much progress. So much hope. So many smiles.
The morning started with the normal nurse evaluation. Nurse Michael asked Gabriella to see if she could lift her arm. I expected the normal reaction, a little shoulder motion and we follow it with encouragement and praise. But this time was so different. Gabriella lifted her arm clear off the bed! She used her shoulder and bicep muscles and lifted the 'lazy arm' right up! PRAISE BE TO GOD!!!!!!! The look on her face was priceless, and you could tell she BELIEVED it was a new day!
We started the therapy day with music therapy. A super amazing guy came in and played the guitar for Gabriella. She really enjoyed the sound and was starting to break the wall she built. I asked her if she liked the music and she nodded. He brought in multiple instruments for her to play and she really enjoyed them!
We followed it with Occupational Therapy. Gabriella sat on a big platform with Miss Cindy and knocked little toys off with her now 'not-so-lazy' arm!! Our newest doggy friend came in and she played catch with a ball with him. She was all smiles with him! He helped us outside in her wheelchair, as Gabriella held his leash. I can't even tell you how great I even felt to get her outside.
We came back in for speech therapy. They got her some soft foods to try, but she really wanted no part of the therapy. We attempted Physical therapy too and she did pretty for a little while. It was time then for a nap, so we came to the room to rest. Though she didn't sleep, she relaxed for a while!
The nutritionist came in and suggested a new NG tube, which I politely declined. I didn't feel we had really worked on eating yet, especially today when she is in better spirits. She ordered nutritional drinks and was a bit unsatisfied with our unwillingness to do another NG. But I am not allowing her to go backward if I have the power, and until it puts her nutritionally at risk, I will not give in.
To offset the NG news, the hematologist came in and said the full workup of blood they did on Gabriella came back. They were searching for ANY other possible reason for the clot besides her heart, i.e. clotting disorders or blood issues. It came back completely clear!!! Which means, once we get past this, get her a new heart and recover from that, Gabriella won't be at risk anymore! No worries of another stroke. No worries of a heart attack or failure. Just a normal little girl starting Kindergarten or 1st grade and dancing her little butt off. I can't help but smile at that great news!
She also took a break to play some Bejeweled on my phone.... sassy diva. :)
We went back for some more speech therapy and she did AMAZING! She is making 'MMM' and 'Ahhhh' sounds. They explained that her brain and telling her to speak, but there is something interrupting the connection to her mouth. She can mimic the expression needed and the coordination needed for the sound to come with it is delayed. She did say however, Gabriella's ability to use the movement and noise together after a few tries is a great sign! She put her "mmm" and "ahhh" together and it sounded so much like 'mom' I could hardly contain myself! The other part of speech that was awesome was she FINALLY ate! Some macaroni and cheese and applesauce! Praise God!
We did some more OT and PT also, and she is gaining strength in her arm as the day goes on! I can only attempt to guess she will be using it in mass amounts a week from today!!!!!!!
Tonight, she had daddy hard at work making beaded bracelets for everyone. She hasn't slept hardly at all.... only enough to rest her body between therapies. We are going to start utilizing the playroom and craft times, also, when we can get used to this schedule.
I am so excited for today's progress.... we have a roommate and she is a precious little girl. Gabriella has already given her a flower for her bed and a bracelet, my little giver. We got out her LAST IV line and she is proud to show it's all gone. HER meds are dwindling down, and her spirits are rising. I only thank God and the amazing abilities he put in the people we met today that helped give her hope.