Firstly, Gabriella's lovely 'zipper' had went from an open wound, to a light pink, to white and healing, to bright red and raised in 5 weeks. It seems as if she is having some keloid formation. Not a big deal, and nothing that will cause issues, but it is a cosmetic thing. We have ordered some silicone strips her doctor recommended and are hoping they get here soon to try! I need to control this now though before they grow too much because they have grown super quick over the last week!
Gabriella was also experiencing a high heart rate for about a week. They call this tachycardia. The heart rate of most transplant kids is slower, but hers was beating over 140 times a minute. This was potentially a first sign of rejection, but could have been many other things, too. Since her biospy showed no rejection, it was most likely dehydration or stress of another kind, possibly even pain she wasn't expressing. Some people post transplant have a typically high heart rate, meaning it is their normal range, but this wasn't the case for Gabriella. It started to get higher at the end of may and shot up again last week, but for whatever reason (wink, wink) it has gone back down! The doctors will watch this and maybe put her on a beta blocker to help her keep it at a healthy range. Could you imagine this girl on an energy drink???
She is also having nightly headaches. This means I get to purchase another piece of medical equipment, a blood pressure cuff! LOL.... The doctor wants to know what her BP is in the morning and again at evenings when her headaches seem to arise. They could be a side effect of the cyclosporine, but I am praying this isn't the case!
But really, when I see her with so much stamina and SO happy, it makes me forget these little hindrances. :)